After some inspiring conversations on Saturday night (one via twitter with a dad of a 10 yr old girl with alobar HPE, and one via phone with the founder of an HPE support organization called HoPE for Families), Ruth and Eric were encouraged to fight for care for Pearl. Since then, she has been readmitted to the NICU at Vanderbilt. Following are bits of correspondence and photos from Eric over the past couple of days:
“So thankful for Vanderbilt. We’ve got an amazing team of pros in our backyard. Pearl’s got so much fight and is stable.”
Yesterday: “Pearl is getting an overnight EEG. I’m so grateful they want to figure out what’s going on. They are ready to fight for her.”
At this point, Ruth has gone home to rest, and Eric is at Vandy with Pearl. The EEG will last until tomorrow morning, after which they will evaluate what comes next.
As always, thank you for your prayers. Please continue to pray for positive and effective medical staff, for Pearl’s strength and healing, for Eric and Ruth to have wisdom and peace in decision making and rest in between. Please also pray for Brennan and Abigail during this tumultuous and likely confusing time.